My History

I've been wanting to write a blog about my experiences for a while, but never did get around to it.
I've finally decided to sit down and sort it all out, so i'll start at the beginning, and add some blog entries from my diary.
Apologies if some entries are long, and also written in different tenses - it depends when I actually wrote them!

Saturday, 29 January 2011

Days -5 to 0 to +3

Not much happening at first, just Fludarabin chemo, and seeing the doctor daily.
Allowed out of room to have a walk as bloods have not dropped too low yet.

Day -2
Malphelan chemo + Mum and Mike visited.
Sickness.

Day -1
Campath chemo, gave me a rash. Sickness and feeling grotty, not been eating much at all for a few days, but managed a microwave pizza and a yoghurt!

Day 0
Woke up sick, lots of anti-sickness. Dozed all day.
Shelley and Mark visited most of the day.
Got Stem Cells around tea time - very uneventful!
Had 2 bags of blood as low HB.
Mum came and stayed over.

Day +1
New syringe driver for sickness as other had made my arm sore.
Lots of anti-sickness.
Mum here.

Day +2
New syringe driver in tummy as both arms now sore.
Got up about 3pm, had a shower and watched a bit of TV. Managed 1/2 bowl of soup.
First day for a few days that i've felt a bit more normal.
Had syringe driver taken off at tea time, as it keeps 'occluding'.
Tummy a bit odd looking/sore where it was, so prob for the best. Both arms red and sore from it.

Day +3
Slept a bit better last night. Arms still sore where driver was.
Ate breakfast and up at about 10am, feeling a little better.
Mum and Mike visited for a few hours.
Still feeling a little sick, but better than I have been.
Been having a funny feeling in my face, like pins and needles, so nurse did a blood test and it came back I was lacking Magnesium, so put on a 2 hour drip to help counter the effects.

Have been getting blood results every day, so here they are from Monday onwards;
Monday:
HB - 8.2
Platelets - 300
White - 3.4
Neutrophils - 3.3

Tuesday:
HB - 7.5
Platelets - 262
White - 2.0
Neutrophils - 2.0

Wednesday:
HB - 7.6
Platelets - 250
White - 3.0
Neutrophils - 2.9

Thursday:
HB - 9.5
Platelets - 250
White - 4.0
Neutrophils - 4.0

Friday:
HB - 9.7
Platelets - 154
White - 1.7
Neutrophils - 1.7

Saturday:
HB - 9.6
Platelets - 140
White - 0.6
Neutrophils - 0.6

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