Day -7

So we arrived just before 2pm, and got shown to my room – not a bad size, with a small but decent quality TV (with freeview and a DVD player), a couple of chairs for visitors, on-suite/wet room (do I make it sound posh?), ‘clean’ and ‘dirty’ hatches for things coming in and out of the room, and also a separate room that people will use to come in and out of my room, where they will wash their hands and apron up before entering.

Unpacked (my 9 pairs of PJs) and put everything in its new ‘home’, and then did a lot of sitting and waiting – but we’re used to that!

I was weighed (56.2kg), had my obs done (blood pressure slightly low as always), bloods taken, had an ECG and an x-ray, did MRSA swabs, and gave ‘samples’.
Obs will be done every 4 hours – 2am, 6am, 10am, 2pm, 6pm, 10pm (approx).

Did a lot more sitting around, ate tea, and finally my first chemo came (Fludarabine) along with a blood thinning injection, plus the nurse and lots of paper work.
I got given a plan of the next 108 days – today is Day -7 [and counting?!], and asked a million and one questions – and got some answers!

10:30pm and a panic attack later [drugs related, as usual] I’ve just got the password for the internet, but I still don’t know if we have been allocated any accommodation for my visitors.
I keep asking, but now because of the time, it won’t be until tomorrow that I find out – thats if the night staff remember to pass the info onto the morning staff......