My History

I've been wanting to write a blog about my experiences for a while, but never did get around to it.
I've finally decided to sit down and sort it all out, so i'll start at the beginning, and add some blog entries from my diary.
Apologies if some entries are long, and also written in different tenses - it depends when I actually wrote them!

Wednesday 17 February 2010

The Waiting Game cont.....

Well, today it's a month since I went down to the Royal Free for my initial consultation.
For those who don't know me, from my previous entry you know I'm getting worse, and for those who do know me, you'll know I'm getting worse because I think I'm moaning about the pain more.

Anyway - back to the month today......and I've still not received a letter either from Lancashire PCT or from the Royal Free or The Christie[Manchester].
I'd said I'd phone the Lymphoma nurse at the Royal Free if I hadn't heard anything by today - which I hadn't, so I did phone.
I had to leave a message on Frans [Lymphoma Nurse Specialist] answephone. She did phone me back this evening, and asked how I was. Told her I wasn't good (Nurses and Doctors have this effect on me that when they ask how I am I nearly burst out into tears! Had to hold them back!), and that the pain has increased.
She sympathised, but said unfortunately they haven't heard anything from my local PCT.
Fran has already passed the message on to chase it up if possible (she passed the message on to someone on Monday), so keep those fingers crossed that I hear something soon.

1 comment:

  1. Fingers tightly crossed hon. Hope you hear something soon xx

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